Hands on Blog For Deep Brain Stimulation
There is a new blog with the written hands on experience of undergoing deep brain stimulation surgery: Focus on a Cure’s Deep Brain Stimulation (DBS) Journal
This blog is created in the hopes that my experiences will give others inspiration to take a risk and have the courage to face the unknown in order to accomplish the impossible as others have done for me.
Stay Focused,
Incredible good insight and information about the whole procedure, especially the whole process before deciding to undergo the procedure.
One thing I was surprised about that after all my research and all my conversations with other DBS patients and doctors no one mentioned the steel ball ear plug portion of the halo/frame procedure. During this portion I asked the surgeon why no one ever mentioned this part he told me it was because most people do not remember it. Well let me be truthful I remember ever second of it and I told him I was going blog about it and let the secret out.
On this blog plenty of posts about the use and indications for Deep Brain Stimulation and on Mind Hacks a short list of things that deep brain stimulation has been used to treat.
Thanks Jan at Medblog.nl
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Hands on Experience with Deep Brain Stimulation for Depression | Dr Shock MD PhD
December 10, 2008 @ 6:28 am
[…] I found a hands on experience blog for someone undergoing deep brain stimulation for parkinson’s disease. Now another blogger who blogs about the participation in a trial: 278-005 DBS Trial. This trial is […]
December 12, 2008 @ 6:49 pm
Those staples look INCREDIBLY painful. I’m sure the pain won’t help the patient’s depression any 😉
February 27, 2009 @ 1:32 am
My husband just had this surgery last week. He said the staples were not painful. He only had a headache the evening after the surgery. What is truly amazing is that he went from neuro ICU the day of the surgery to being dismissed the following morning!
November 30, 2009 @ 2:57 am
Karen,
I am considering DBS for essential tremors at the Mayo Clinic. I’ve been trying to find someone to talk to to give me a patient perspective about the post surgery experience.
Thanks!
December 1, 2009 @ 3:21 am
Roger, I’m sure my husband would be happy to discuss with you. He does not have tremors, though, he has rigidity issues. Our understanding is that tremors are much easier to help with the DBS. If you would like to leave your e-mail here (or if you have a better idea, please share), I’ll ask that he contact you to discuss further.
Karen
December 8, 2009 @ 10:03 pm
I am interested in your post DBS treatments, adjustments and experiences. How often did you find it necessary to have follow-up support services (including medications) of any kind within the first year? This seems a likely option for my essential tremors which are confined to both hands despite years of drug therapies, biofeedback and accupuncture. Thank you.
December 3, 2010 @ 4:53 am
on Nov 30th at university of mo I underwent DBS surgery on both side’s of the brain.Went from operating table to nuero- ISU , I was up walking 2hrs after procedure. I would recommend it to those who meet all requirements. I was released the next day. o back dec 8th for outpatient procedure ( to be weired up )